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Lothian Primary and Secondary Care with Phenotypes

Summary

Abstract

A curated dataset that integrates the codes used by NHS Lothian GPs and hospitals/facilities – along with national records – to summarise patient conditions based on the defined standards from the HDR UK Phenotype Library.

Keywords

Publisher

  • Name
    DataLoch
  • Logo

    Not available

  • Description
    Not available
  • Contact point
    Not available

Documentation

Description

Primary care, secondary care (Scottish Morbidity Records) and deaths data (NRS) where ICD10, OPCS and Read2 codes are mapped to Caliber phenotypes. Only records that can be mapped to Caliber Phenotypes are included in this dataset.

Coverage

Spatial

  • Spatial coverage

    United Kingdom, Scotland, City of Edinburgh, United Kingdom, Scotland, East Lothian, United Kingdom, Scotland, West Lothian, United Kingdom, Scotland, Midlothian

  • Geographic levels
    Not available

Temporal

  • Start date
    01/01/1996
  • End date
    Not available
  • Frequency
    Monthly
  • Distribution release date
    Not available

Provenance

  • Purpose
    Not available
  • Source
    Not available
  • Collection situation
    Primary care - Clinic, Secondary care - Accident and Emergency, Secondary care - Outpatients, Secondary care - In-patients

Access and governance

  • Conditions of access
    Project-specific restrictions

Requesting access to this data

This is a secure dataset that can only be accessed by researchers from approved organisations.

Find out how to apply to access this dataset

Usage

  • Conditions of use
    Not available
  • Resource creator
    NHS Lothian, Public Health Scotland, Lothian GP Practices
  • Is referenced by
    Not available

Access

Format and standards

  • Language
    English
  • Format
    Text/csv

Enrichment and linkage

  • Related datasets
    • Not available
  • Linkage opportunity
    Not available
  • Tools
    • Not available

Synthetic data

Synthetic data is not yet available for this dataset. 

Technical information

A JSON file is available with further technical information. This can include details of variables and data classes contained in the dataset.

Preview of JSON file

{
  "linkage": {
    "associatedMedia": "https://dataloch.org/insights/projects-delivered;,;https://web.www.healthdatagateway.org/search?search=dataloch&tab=Datauses"
  },
  "summary": {
    "title": "Lothian Primary and Secondary Care with Phenotypes",
    "abstract": "A curated dataset that integrates the codes used by NHS Lothian GPs and hospitals/facilities – along with national records – to summarise patient conditions based on the defined standards from the HDR UK Phenotype Library.",
    "keywords": "DataLoch;,;GP;,;Read Codes;,;SMR;,;Scottish Morbidity;,;CALIBER;,;Health Conditions;,;HDR UK Phenotypes;,;SIMD;,;Public Health Scotland;,;PHS",
    "publisher": {
      "name": "DataLoch",
      "gatewayId": "6853e904-ed51-448b-b78d-55dee6d1a40f"
    },
    "inPipeline": "Not available",
    "shortTitle": "Lothian Primary and Secondary Care with Phenotypes",
    "datasetType": "Health and disease",
    "description": "Primary care, secondary care (Scottish Morbidity Records) and deaths data (NRS) where ICD10, OPCS and Read2 codes are mapped to Caliber phenotypes. Only records that can be mapped to Caliber Phenotypes are included in this dataset.",
    "contactPoint": "dataloch@ed.ac.uk",
    "datasetSubType": "Not applicable",
    "populationSize": -1
  },
  "coverage": {
    "spatial": "United Kingdom,Scotland,City of Edinburgh;,;United Kingdom,Scotland,East Lothian;,;United Kingdom,Scotland,West Lothian;,;United Kingdom,Scotland,Midlothian",
    "followUp": "Other",
    "typicalAgeRange": "0-150"
  },
  "required": {
    "issued": "2024-10-08T11:32:03.662651Z",
    "version": "1.0.0",
    "modified": "2024-10-08T11:32:03.66266Z",
    "gatewayId": "808",
    "revisions": [
      {
        "url": "https://web.prod.hdruk.cloud//dataset/808?version=1.0.0",
        "version": "1.0.0"
      }
    ],
    "gatewayPid": "e347e84e-fb5d-4275-8974-79269fe89406"
  },
  "provenance": {
    "origin": {
      "imageContrast": "Not stated",
      "collectionSituation": "Primary care - Clinic;,;Secondary care - Accident and Emergency;,;Secondary care - Outpatients;,;Secondary care - In-patients"
    },
    "temporal": {
      "timeLag": "Variable",
      "startDate": "1996-01-01",
      "accrualPeriodicity": "Monthly"
    }
  },
  "observations": [
    {
      "observedNode": "Findings",
      "measuredValue": 10000000,
      "observationDate": "2022-08-17",
      "measuredProperty": "Count",
      "disambiguatingDescription": "Number of Caliber phentoype codes assigned to GP ReadCode events. A single patient interaction event can have multiple phenotype codes assigned."
    },
    {
      "observedNode": "Findings",
      "measuredValue": 11500000,
      "observationDate": "2022-08-17",
      "measuredProperty": "Count",
      "disambiguatingDescription": "Number of Caliber phentoype codes assigned to SMR events. A single SMR event can have multiple phenotype codes assigned."
    },
    {
      "observedNode": "Findings",
      "measuredValue": 4500000,
      "observationDate": "2022-08-17",
      "measuredProperty": "Count",
      "disambiguatingDescription": "Number of Caliber phentoype codes assigned to NRS Death events. A single death event can have multiple phenotype codes assigned."
    }
  ],
  "accessibility": {
    "usage": {
      "resourceCreator": {
        "name": "NHS Lothian, Public Health Scotland, Lothian GP Practices"
      },
      "dataUseLimitation": "Project-specific restrictions"
    },
    "access": {
      "accessRights": "https://dataloch.org/data/how-to-apply",
      "jurisdiction": "GB-SCT",
      "accessService": "https://dataloch.org/data/how-to-apply",
      "dataProcessor": "University of Edinburgh",
      "dataController": "Lothian GP Practices, NHS Lothian, Public Health Scotland",
      "deliveryLeadTime": "Variable",
      "accessRequestCost": "https://dataloch.org/data/how-to-apply"
    },
    "formatAndStandards": {
      "formats": "text/csv",
      "languages": "en",
      "vocabularyEncodingSchemes": "OPCS4;,;ICD10;,;READ"
    }
  }
}

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