South East Scotland Cancer Database - Core Oncology Dataset

Preview of JSON file

{
  "linkage": {
    "associatedMedia": "https://cancer-data.ecrc.ed.ac.uk/"
  },
  "summary": {
    "title": "South East Scotland Cancer Database  - Core Oncology Dataset",
    "abstract": "The oncology database was established in 2019 building on 40+ years of data collection across the region of the South East Scotland Cancer Network. The database holds data on diagnosis, treatment and outcomes of patients undergoing care within the region.",
    "keywords": "Cancer;,;Oncology;,;Tumour;,;Metastatic Disease;,;Malignancy;,;Neoplasm;,;Invasive Disease;,;Cancer Treatment;,;Radiotherapy;,;Chemocare;,;Systematic Anti-Cancer Therapy;,;Edinburgh Cancer Informatics;,;Cancer Research UK;,;Edinburgh Cancer Centre;,;University of Edinburgh;,;Institute of Genetics and Cancer;,;IGC",
    "publisher": {
      "name": "DataLoch",
      "gatewayId": "6853e904-ed51-448b-b78d-55dee6d1a40f"
    },
    "inPipeline": "Not available",
    "shortTitle": "South East Scotland Cancer Database  - Core Oncology Dataset",
    "datasetType": "Health and disease",
    "description": "SESCD oncology data is recorded and curated by a dedicated team of clinical coders using paper-based patient case notes, electronic patient records, Scottish morbidity registers, and secondary healthcare databases. In addition, there are a number of automatic feeds from various national, regional and bespoke databases and EPRs which are quality checked by the coding team. Clinical expertise is provided by a dedicated team of clinical and research professionals.",
    "contactPoint": "cancer.information@nhslothian.scot.nhs.uk",
    "datasetSubType": "Not applicable",
    "populationSize": 163788
  },
  "coverage": {
    "pathway": "Integrated care record covering the whole cancer patient pathway from initial diagnosis to death.",
    "spatial": "United Kingdom,Scotland,City of Edinburgh;,;United Kingdom,Scotland,East Lothian;,;United Kingdom,Scotland,Midlothian;,;United Kingdom,Scotland,West Lothian;,;United Kingdom,Scotland,Dumfries and Galloway;,;United Kingdom,Scotland,Scottish Borders;,;United Kingdom,Scotland,Fife",
    "followUp": "Continuous",
    "typicalAgeRange": "0-150"
  },
  "required": {
    "issued": "2024-10-08T11:32:03.657481Z",
    "version": "1.0.0",
    "modified": "2024-10-08T11:32:03.657493Z",
    "gatewayId": "807",
    "revisions": [
      {
        "url": "https://web.prod.hdruk.cloud//dataset/807?version=1.0.0",
        "version": "1.0.0"
      }
    ],
    "gatewayPid": "416c131e-c524-41da-ade1-9985ca3e453b"
  },
  "provenance": {
    "origin": {
      "imageContrast": "Not stated",
      "collectionSituation": "Clinic;,;Secondary care - Outpatients;,;Secondary care - In-patients;,;Services;,;Prescribing - Community pharmacy;,;Other"
    },
    "temporal": {
      "timeLag": "Variable",
      "startDate": "1974-01-01",
      "accrualPeriodicity": "Continuous"
    }
  },
  "observations": [
    {
      "observedNode": "Persons",
      "measuredValue": 163788,
      "observationDate": "2022-08-24",
      "measuredProperty": "Count",
      "disambiguatingDescription": "Cancer patients in the South East of Scotland"
    }
  ],
  "accessibility": {
    "usage": {
      "resourceCreator": {
        "name": "NHS Lothian"
      },
      "dataUseLimitation": "Project-specific restrictions;,;Research-specific restrictions",
      "dataUseRequirement": "Project-specific restrictions;,;Disclosure control"
    },
    "access": {
      "accessRights": "https://www.wiki.ed.ac.uk/display/CAN/Governance",
      "jurisdiction": "GB-SCT",
      "accessService": "Researchers define their cohort and time period and select from a list of available data variables. Analysts will retrieve the data and make it available as an Excel file.",
      "dataProcessor": "NHS Lothian",
      "dataController": "NHS Lothian",
      "deliveryLeadTime": "2-4 weeks",
      "accessRequestCost": "Available on request",
      "accessServiceCategory": "Direct access"
    },
    "formatAndStandards": {
      "formats": "application/sql;,;text/csv",
      "languages": "en",
      "vocabularyEncodingSchemes": "LOCAL;,;OPCS4;,;ICD10;,;ICD10CM;,;ICDO3"
    }
  }
}