Child Health Systems Programme - 4-5 year review

Preview of JSON file

{
  "linkage": {
    "associatedMedia": "https://www.isdscotland.org/Health-Topics/Child-Health/Child-Health-Programme/Child-Health-Systems-Programme-Pre-School.asp"
  },
  "summary": {
    "title": "Child Health Systems Programme - 4-5 year review",
    "abstract": "The 4-5 year review form  is completed at around 4-5 years of age and is carried out by a health visitor.",
    "keywords": "Child Health",
    "publisher": {
      "name": "Public Health Scotland",
      "gatewayId": "c40be7ce-f0ca-4fd8-b63c-0632593d2507"
    },
    "inPipeline": "Not available",
    "shortTitle": "Child Health Systems Programme - 4-5 year review",
    "datasetType": "Health and disease",
    "description": "The 4-5 year review form is completed at around 4-5 years of age and is carried out by a health visitor. This review started in April 2017 and is offered to all children (implementation of this review may vary across Scotland). Examples of information collected include: development (social, behavioural, communication, gross motor, vision, hearing), physical measurements (height and weight) and diagnoses / issues (Read coded). Identification data such as name, address, GP etc. are also checked and updated.",
    "contactPoint": "phs.edris@phs.scot",
    "datasetSubType": "Not applicable",
    "populationSize": -1
  },
  "coverage": {
    "spatial": "United Kingdom,Scotland",
    "typicalAgeRange": "0-4"
  },
  "required": {
    "issued": "2024-10-08T11:28:17.412459Z",
    "version": "6.0.0",
    "modified": "2024-10-08T11:28:17.41247Z",
    "gatewayId": "65",
    "revisions": [
      {
        "url": "https://web.prod.hdruk.cloud//dataset/65?version=1.0.0",
        "version": "1.0.0"
      }
    ],
    "gatewayPid": "3e59e6a2-4d39-4b18-b350-6f105de94289"
  },
  "provenance": {
    "origin": {
      "imageContrast": "Not stated"
    },
    "temporal": {
      "timeLag": "Other",
      "startDate": "2017-04-01",
      "accrualPeriodicity": "Monthly"
    }
  },
  "accessibility": {
    "usage": {
      "resourceCreator": {
        "name": "National Services Scotland"
      }
    },
    "access": {
      "accessRights": "https://www.informationgovernance.scot.nhs.uk/pbpphsc/;,;https://www.isdscotland.org/Products-and-Services/eDRIS/;,;https://publichealthscotland.scot/contact-us/bespoke-data-analysis-requests/",
      "jurisdiction": "GB-GBN",
      "accessService": "Scottish National Data Safe Haven - https://www.isdscotland.org/Products-and-Services/eDRIS/",
      "dataProcessor": "National Services Scotland",
      "dataController": "Public Health Scotland",
      "deliveryLeadTime": "Not applicable",
      "accessRequestCost": "Research Projects - https://www.isdscotland.org/Products-and-Services/eDRIS/;,;Bespoke data analysis requests - https://publichealthscotland.scot/contact-us/bespoke-data-analysis-requests/",
      "accessServiceCategory": "TRE/SDE"
    },
    "formatAndStandards": {
      "formats": "text/csv",
      "languages": "en",
      "vocabularyEncodingSchemes": "OTHER"
    }
  },
  "structuralMetadata": [
    {
      "name": "Issues / Issues Status / Read Coding.   Recall & Unscheduled reviews",
      "columns": [
        {
          "name": "Summary  List of issues",
          "dataType": "Free text",
          "sensitive": false,
          "description": "List of any issues likely to be relevant to the child’s ongoing health, development, or wellbeing.  Up to 4 issues can be recorded on any one form.  Extra forms can be used to record additional issues if required.  There is no upper limit to the number issues that can be recorded on the system."
        }
      ],
      "description": "Issues / Issues Status / Read Coding.   Recall & Unscheduled reviews"
    },
    {
      "name": "Issues / Issues Status / Read Coding.   Recall & Unscheduled reviews",
      "columns": [
        {
          "name": "Review carried out \n-on examination \n-by telephone \n-by review of notes",
          "dataType": "Text",
          "sensitive": false,
          "description": "How was the recall review carried out?"
        }
      ],
      "description": "Issues / Issues Status / Read Coding.   Recall & Unscheduled reviews"
    },
    {
      "name": "Issues / Issues Status / Read Coding.   Recall & Unscheduled reviews",
      "columns": [
        {
          "name": "Read code",
          "dataType": "5 character alphanumeric code",
          "sensitive": false,
          "description": "Read code relevant to each issue listed by the Health Visitor responsible for the child health review (see above)"
        }
      ],
      "description": "Issues / Issues Status / Read Coding.   Recall & Unscheduled reviews"
    },
    {
      "name": "Issues / Issues Status / Read Coding.   Recall & Unscheduled reviews",
      "columns": [
        {
          "name": "Recall requested on",
          "dataType": "date",
          "sensitive": false,
          "description": "Date of the previous review where the recall/follow-up was requested"
        }
      ],
      "description": "Issues / Issues Status / Read Coding.   Recall & Unscheduled reviews"
    },
    {
      "name": "Issues / Issues Status / Read Coding.   Recall & Unscheduled reviews",
      "columns": [
        {
          "name": "Reason for using this form",
          "dataType": "number",
          "sensitive": false,
          "description": "Reason why an unscheduled review form has been completed for the child \n1 (transfer into caseload) 2 (outwith age range for routine      contact) \n3\t(change of HPI – Health Plan  \n    Indicator – outwith routine contact) \n4\t(referral outwith routine contact)"
        }
      ],
      "description": "Issues / Issues Status / Read Coding.   Recall & Unscheduled reviews"
    },
    {
      "name": "Issues / Issues Status / Read Coding.   Recall & Unscheduled reviews",
      "columns": [
        {
          "name": "Appt",
          "dataType": "Text",
          "sensitive": false,
          "description": "Duration of recall/ follow up appointment to be scheduled \nS (short) \nM (medium) \nL (long)"
        }
      ],
      "description": "Issues / Issues Status / Read Coding.   Recall & Unscheduled reviews"
    },
    {
      "name": "Issues / Issues Status / Read Coding.   Recall & Unscheduled reviews",
      "columns": [
        {
          "name": "Reason for recall",
          "dataType": "Free text",
          "sensitive": false,
          "description": "Reason for recall/ follow up appointment"
        }
      ],
      "description": "Issues / Issues Status / Read Coding.   Recall & Unscheduled reviews"
    },
    {
      "name": "Issues / Issues Status / Read Coding.   Recall & Unscheduled reviews",
      "columns": [
        {
          "name": "Reason for Recall",
          "dataType": "Text",
          "sensitive": false,
          "description": "Reason for recall as noted n the previous review form"
        }
      ],
      "description": "Issues / Issues Status / Read Coding.   Recall & Unscheduled reviews"
    },
    {
      "name": "Issues / Issues Status / Read Coding.   Recall & Unscheduled reviews",
      "columns": [
        {
          "name": "Issue status",
          "dataType": "number",
          "sensitive": false,
          "description": "Indicates the status of each listed issue \n0\t(referred/assistance requested) \n1\t(issue ongoing) \n2\t(no longer has issue) \n3\t(amend issue) \n4\t(no information available) \n5\t(issue/code incorrectly recorded) \n6\t(discharged due to DNA – did           not attend)"
        }
      ],
      "description": "Issues / Issues Status / Read Coding.   Recall & Unscheduled reviews"
    },
    {
      "name": "Issues / Issues Status / Read Coding.   Recall & Unscheduled reviews",
      "columns": [
        {
          "name": "Recall to  HV/GP in",
          "dataType": "3 digit code",
          "sensitive": false,
          "description": "Recall/ follow up appointments are in addition to the national schedule of universally offered child health reviews and are only requested by Health Visitors when clinically necessary. \nThe interval specified must be greater than 4 weeks to ensure adequate time is available for the results of the current review to be input into CHSP-PS and the recall appointment invitation issued. Note Recall to GP is only on the 6-8 Week & Recall Forms"
        }
      ],
      "description": "Issues / Issues Status / Read Coding.   Recall & Unscheduled reviews"
    },
    {
      "name": "Health Plan Indicator / Support Needs Status / Parental Consent",
      "columns": [
        {
          "name": "Updated HPI",
          "dataType": "Text",
          "sensitive": false,
          "description": "Updated Health Plan Indicator recorded at the end of the child health review. See Health Plan Indicator variable above for full definition. \nC (core) \nA (additional) \nU (unknown)"
        }
      ],
      "description": "Health Plan Indicator / Support Needs Status / Parental Consent"
    },
    {
      "name": "Health Plan Indicator / Support Needs Status / Parental Consent",
      "columns": [
        {
          "name": "Signature Print name",
          "dataType": "Free text",
          "sensitive": false,
          "description": "Signature and name of the health professional(s) completing the CHSP-PS form"
        }
      ],
      "description": "Health Plan Indicator / Support Needs Status / Parental Consent"
    },
    {
      "name": "Health Plan Indicator / Support Needs Status / Parental Consent",
      "columns": [
        {
          "name": "ID No:",
          "dataType": "Codes from local (NHS Board) reference file",
          "sensitive": false,
          "description": "Professional identification number of the health professional(s) completing the CHSP-PS form"
        }
      ],
      "description": "Health Plan Indicator / Support Needs Status / Parental Consent"
    },
    {
      "name": "Health Plan Indicator / Support Needs Status / Parental Consent",
      "columns": [
        {
          "name": "Practitioners involved in review:",
          "dataType": "Text",
          "sensitive": false,
          "description": "Health professional(s) directly involved in delivering the child health review \tMust complete one box with Y (yes)"
        }
      ],
      "description": "Health Plan Indicator / Support Needs Status / Parental Consent"
    },
    {
      "name": "Health Plan Indicator / Support Needs Status / Parental Consent",
      "columns": [
        {
          "name": "Support Needs Status",
          "dataType": "number",
          "sensitive": false,
          "description": "Child’s status on the Support Needs System \n0\t(Not active on SNS) \n1\t(Active – not yet notified to doctor) \n2\t(Active – not yet assessed) \n3\t(Active – being assessed) \n4\t(Previously on SNS) \n8 (No planned assessment)"
        }
      ],
      "description": "Health Plan Indicator / Support Needs Status / Parental Consent"
    },
    {
      "name": "Health Plan Indicator / Support Needs Status / Parental Consent",
      "columns": [
        {
          "name": "Summary comment",
          "dataType": "Free text",
          "sensitive": false,
          "description": "Any additional information the Health Visitor wishes to record"
        }
      ],
      "description": "Health Plan Indicator / Support Needs Status / Parental Consent"
    },
    {
      "name": "Health Plan Indicator / Support Needs Status / Parental Consent",
      "columns": [
        {
          "name": "Health plan indicator",
          "dataType": "Text",
          "sensitive": false,
          "description": "Summary indicator of the child’s overall need for ongoing support. \nAn additional HPI indicates that the child (and/or their carer) requires sustained (>3 months) additional input from professional services to help the child attain their health or development potential.  Any services may be required such as additional Health Visitor support, parenting support, enhanced early learning and childcare, specialist medical input, etc. \nC (core) \nA (additional) \nU (unknown)"
        }
      ],
      "description": "Health Plan Indicator / Support Needs Status / Parental Consent"
    },
    {
      "name": "Health Plan Indicator / Support Needs Status / Parental Consent",
      "columns": [
        {
          "name": "Place of review:",
          "dataType": "Must complete one box with Y (yes)",
          "sensitive": false,
          "description": "Location(s) where the child health review was delivered"
        }
      ],
      "description": "Health Plan Indicator / Support Needs Status / Parental Consent"
    },
    {
      "name": "Developmental / ASQ Scores / Tools",
      "columns": [
        {
          "name": "Tools",
          "dataType": "Text",
          "sensitive": false,
          "description": "Record of any validated developmental assessment questionnaires/ tools completed as part of the child health review \n01\tPEDS (Parents’ evaluation of       developmental status) \n02\tPEDS:DM (Parents’ evaluation       of developmental status:       developmental milestones) 03 ASQ 3 (Ages and stages       questionnaire version 3) \n05\tSDQ (Strengths and difficulties       questionnaire) \n06\tASQ:SE (Ages and stages       questionnaire: social and       emotional version 2) 07 SSLM (Sure start language       measure) \n08 M-CHAT (Modified checklist for       autism in toddlers) \n10\tOther (indicates a different       validated developmental       assessment questionnaire was       administered as part of the child       health review) \n11\tNone"
        }
      ],
      "description": "Developmental / ASQ Scores / Tools"
    },
    {
      "name": "Developmental / ASQ Scores / Tools",
      "columns": [
        {
          "name": "OFC",
          "dataType": "NNN.N (or 0 to indicate not done)",
          "sensitive": false,
          "description": "Occipito-frontal circumference in centimeters to one decimal place"
        }
      ],
      "description": "Developmental / ASQ Scores / Tools"
    },
    {
      "name": "Developmental / ASQ Scores / Tools",
      "columns": [
        {
          "name": "ASQ Score",
          "dataType": "Score between 0 and 60",
          "sensitive": false,
          "description": "Scoring of the developmental assessment undertaken as part of the child health review relating to the specific development domains"
        }
      ],
      "description": "Developmental / ASQ Scores / Tools"
    },
    {
      "name": "Developmental / ASQ Scores / Tools",
      "columns": [
        {
          "name": "Length / Height",
          "dataType": "NNN.N (or 0 to indicate not done)",
          "sensitive": false,
          "description": "Child’s length or height (depending on child’s age/form) in centimeters to one decimal place"
        }
      ],
      "description": "Developmental / ASQ Scores / Tools"
    },
    {
      "name": "Developmental / ASQ Scores / Tools",
      "columns": [
        {
          "name": "Date measured",
          "dataType": "ddmmyy",
          "sensitive": false,
          "description": "Date on which growth measurements were taken"
        }
      ],
      "description": "Developmental / ASQ Scores / Tools"
    },
    {
      "name": "Developmental / ASQ Scores / Tools",
      "columns": [
        {
          "name": "Weight",
          "dataType": "NNN.N (or 0 to indicate not done)",
          "sensitive": false,
          "description": "Child’s weight in kilograms to two decimal places"
        }
      ],
      "description": "Developmental / ASQ Scores / Tools"
    },
    {
      "name": "Developmental / ASQ Scores / Tools",
      "columns": [
        {
          "name": "Development \n-Speech, Language \n  & Communication \n-Problem Solving \n-Emotional/Behavioural \n-Gross Motor \n-Personal/Social \n-Vision \n-Fine Motor \n-Hearing",
          "dataType": "Text",
          "sensitive": false,
          "description": "Results of the developmental assessment undertaken as part of the child health review relating to the specific developmental domains \nC - Concern newly suspected means that the concern has been identified for the first time as a result of the assessment undertaken within the child health review. \nP - Concern/ disorder previously identified means that the child was known to have developmental delay or a specific developmental disorder prior to the child health review being undertaken."
        }
      ],
      "description": "Developmental / ASQ Scores / Tools"
    },
    {
      "name": "Future Action",
      "columns": [
        {
          "name": "Deferred entry",
          "dataType": "Y (yes), N (no)",
          "sensitive": false,
          "description": "Is the child to be deferred to the following year for school entry"
        }
      ],
      "description": "Future Action"
    },
    {
      "name": "Future Action",
      "columns": [
        {
          "name": "Future Action",
          "dataType": "Text",
          "sensitive": false,
          "description": "Record of specific actions the Health Visitor intends to take to support the child/family following the child health review. \n‘Provide’ indicates that the Health Visitor and/or associated skill mix team will directly provide the specified additional support (only relevant for some options). ‘Signposted to’ indicates that parents have been given details of specified local services and how to access them. \n‘Discuss with’ indicates that the Health Visitor will formally discuss the child/family with the specified service to inform future management plans. \n‘Request assistance from’ indicates that the Health Visitor will formally refer the child/family to the specified service, whilst retaining responsibility for oversight of the child’s wellbeing and outcomes as their GIRFEC named person. \nW ‘Refused’ indicates that the carer has been offered provision/ signposting/ discussion/ referral to the specified service but has refused this."
        }
      ],
      "description": "Future Action"
    },
    {
      "name": "Future Action",
      "columns": [
        {
          "name": "School Code",
          "dataType": "Text",
          "sensitive": false,
          "description": "5 digit school code"
        }
      ],
      "description": "Future Action"
    },
    {
      "name": "Future Action",
      "columns": [
        {
          "name": "Attends \n-Nursery \n-Playgroup \n-Registered childminder \n-Other childcare \n-None",
          "dataType": "Must complete at least one box with Y",
          "sensitive": false,
          "description": "Does the child currently regularly (at least once a week) attend the specified form of childcare for any period?"
        }
      ],
      "description": "Future Action"
    },
    {
      "name": "Demographic / Birth details",
      "columns": [
        {
          "name": "CHI no",
          "dataType": "10 digit number",
          "sensitive": false,
          "description": "Community Health Index number"
        }
      ],
      "description": "Demographic / Birth details"
    },
    {
      "name": "Demographic / Birth details",
      "columns": [
        {
          "name": "Carer present with child (At Review)",
          "dataType": "Text",
          "sensitive": false,
          "description": "Carer(s) present with child at review.  Primary carer refers to the adult living (at least most of the time) with the child who provides most day to day care."
        }
      ],
      "description": "Demographic / Birth details"
    },
    {
      "name": "Demographic / Birth details",
      "columns": [
        {
          "name": "Is English 1st language at home?",
          "dataType": "Y (yes), N (no)",
          "sensitive": false,
          "description": "Is English the main language spoken in the child’s home?"
        }
      ],
      "description": "Demographic / Birth details"
    },
    {
      "name": "Demographic / Birth details",
      "columns": [
        {
          "name": "Health Visitor",
          "dataType": "Code from local (NHS Board) reference file",
          "sensitive": false,
          "description": "Health Visitor identification number for Health Visitor responsible for the child’s care"
        }
      ],
      "description": "Demographic / Birth details"
    },
    {
      "name": "Demographic / Birth details",
      "columns": [
        {
          "name": "Date of visit / review / assessment",
          "dataType": "ddmmyy",
          "sensitive": false,
          "description": "Date Health Visitor first visit was completed"
        }
      ],
      "description": "Demographic / Birth details"
    },
    {
      "name": "Demographic / Birth details",
      "columns": [
        {
          "name": "Ethnicity",
          "dataType": "See list at foot of table",
          "sensitive": false,
          "description": "Child’s ethnicity as stated by their primary carer"
        }
      ],
      "description": "Demographic / Birth details"
    },
    {
      "name": "Demographic / Birth details",
      "columns": [
        {
          "name": "Name/address/ postcode",
          "dataType": "Text",
          "sensitive": false,
          "description": "Child’s demographic details"
        }
      ],
      "description": "Demographic / Birth details"
    },
    {
      "name": "Demographic / Birth details",
      "columns": [
        {
          "name": "HB",
          "dataType": "Code from national (ISD) reference file",
          "sensitive": false,
          "description": "NHS Board of child’s residence"
        }
      ],
      "description": "Demographic / Birth details"
    },
    {
      "name": "Demographic / Birth details",
      "columns": [
        {
          "name": "Change of",
          "dataType": "Free text",
          "sensitive": false,
          "description": "If any pre-printed demographic data is incorrect it should be updated in the Change of Details box \nUpdated Health Visitor identification number for Health Visitor responsible for the child’s care"
        }
      ],
      "description": "Demographic / Birth details"
    },
    {
      "name": "Demographic / Birth details",
      "columns": [
        {
          "name": "Bilingual/multilingual",
          "dataType": "Y (yes), N (no)",
          "sensitive": false,
          "description": "Is the child routinely exposed to more than one spoken language in their home and/or care environment?"
        }
      ],
      "description": "Demographic / Birth details"
    },
    {
      "name": "Demographic / Birth details",
      "columns": [
        {
          "name": "Has BCG been given?",
          "dataType": "Y (yes), N (no) / text",
          "sensitive": false,
          "description": "Has child received BCG vaccination?"
        }
      ],
      "description": "Demographic / Birth details"
    },
    {
      "name": "Demographic / Birth details",
      "columns": [
        {
          "name": "Concerns raised by carer",
          "dataType": "R (raised) or blank",
          "sensitive": false,
          "description": "During the child health review, has the child’s carer raised specific concerns about any of the areas listed?"
        }
      ],
      "description": "Demographic / Birth details"
    },
    {
      "name": "Demographic / Birth details",
      "columns": [
        {
          "name": "At risk TB",
          "dataType": "Y (yes), N (no)",
          "sensitive": false,
          "description": "Child eligible to receive BCG vaccination"
        }
      ],
      "description": "Demographic / Birth details"
    },
    {
      "name": "Demographic / Birth details",
      "columns": [
        {
          "name": "Gender",
          "dataType": "Male, female",
          "sensitive": false,
          "description": "Child’s gender"
        }
      ],
      "description": "Demographic / Birth details"
    },
    {
      "name": "Demographic / Birth details",
      "columns": [
        {
          "name": "Current LAC status",
          "dataType": "See list at foot of table",
          "sensitive": false,
          "description": "Is the child currently (at the time of the review) looked after by the Local Authority for any reason?"
        }
      ],
      "description": "Demographic / Birth details"
    },
    {
      "name": "Demographic / Birth details",
      "columns": [
        {
          "name": "Scheduled date of review",
          "dataType": "ddmmyy",
          "sensitive": false,
          "description": "Start of scheduling period the child health review was scheduled to take place"
        }
      ],
      "description": "Demographic / Birth details"
    },
    {
      "name": "Childsmile / Dental",
      "columns": [
        {
          "name": "Registered with dentist",
          "dataType": "Y (yes), N (no)",
          "sensitive": false,
          "description": "Was the child registered with an NHS dentist"
        }
      ],
      "description": "Childsmile / Dental"
    },
    {
      "name": "Childsmile / Dental",
      "columns": [
        {
          "name": "Ever attended dentist Attended dentist in last 12months",
          "dataType": "Y (yes), N (no)",
          "sensitive": false,
          "description": "Has the child ever attended an NHS dentist for any reason or attended over the 12 months prior to their child health review?"
        }
      ],
      "description": "Childsmile / Dental"
    },
    {
      "name": "Childsmile / Dental",
      "columns": [
        {
          "name": "Childsmile outcome at last review",
          "dataType": "Text",
          "sensitive": false,
          "description": "What was recorded in the ‘Childsmile’ box in the Future Action section of the child’s last review \nR (request assistance from) W (refused)"
        }
      ],
      "description": "Childsmile / Dental"
    },
    {
      "name": "Childsmile / Dental",
      "columns": [
        {
          "name": "Toothbrushing twice daily",
          "dataType": "Y (yes), N (no)",
          "sensitive": false,
          "description": "Does the child currently brush teeth twice daily"
        }
      ],
      "description": "Childsmile / Dental"
    }
  ]
}