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BHDP - National Records of Scotland (NRS) - Deaths Data

Summary

Abstract

All registrations to the National Records of Scotland of deaths This is a subset of data for the Brain Health Data Pilot (BHDP) project.

Keywords

Publisher

  • Name
    Public Health Scotland
  • Logo

    Not available

  • Description
    Not available
  • Contact point
    Not available

Documentation

Description

This is a subset of National Records of Scotland (NRS) - Deaths dataset for use in the Brain Health Data Pilot (BHDP) project. The Brain Health Data Pilot (BHDP) project aims to be a shared database (like a library) of information for scientists studying brain health, especially for diseases like dementia, which affects about 900,000 people in the UK. Its main feature is a huge collection of brain images linked to routinely collected health records, both from NHS Scotland, which will help scientists learn more about dementia and other brain diseases. What is special about this database is that it will get better over time – as scientists use it and add their discoveries, it becomes more valuable.

Coverage

Spatial

  • Spatial coverage

    United Kingdom, Scotland

  • Geographic levels
    Not available

Temporal

  • Start date
    01/01/2000
  • End date
    10/05/2024
  • Frequency
    Static
  • Distribution release date
    17/06/2024

Provenance

  • Purpose
    Not available
  • Source
    Other
  • Collection situation
    Other

Access and governance

  • Conditions of access
    Project-specific restrictions, Research use only

Requesting access to this data

This is a secure dataset that can only be accessed by researchers from approved organisations.

Find out how to apply to access this dataset

Usage

  • Conditions of use
    Institution-specific restrictions, Project-specific restrictions
  • Resource creator
    None
  • Is referenced by
    Not available

Access

Format and standards

  • Language
    English
  • Format
    Text, csv

Enrichment and linkage

  • Related datasets
    • Not available
  • Linkage opportunity
    Not available
  • Tools
    • Not available

Synthetic data

Synthetic data is not yet available for this dataset. 

Technical information

A JSON file is available with further technical information. This can include details of variables and data classes contained in the dataset.

Preview of JSON file

{
  "linkage": {
    "associatedMedia": "https://publichealthscotland.scot/services/data-research-and-innovation-services/electronic-data-research-and-innovation-service-edris/overview/what-is-edris/"
  },
  "summary": {
    "title": "BHDP - National Records of Scotland (NRS) - Deaths Data",
    "abstract": "All registrations to the National Records of Scotland of deaths\n\nThis is a subset of data for the Brain Health Data Pilot (BHDP) project.",
    "keywords": "Deaths",
    "publisher": {
      "name": "Public Health Scotland",
      "gatewayId": "c40be7ce-f0ca-4fd8-b63c-0632593d2507"
    },
    "inPipeline": "Not available",
    "shortTitle": "BHDP - National Records of Scotland (NRS) - Deaths Data",
    "datasetType": "Health and disease",
    "description": "This is a subset of National Records of Scotland (NRS) - Deaths dataset for use in the Brain Health Data Pilot (BHDP) project. \n\nThe Brain Health Data Pilot (BHDP) project aims to be a shared database (like a library) of information for scientists studying brain health, especially for diseases like dementia, which affects about 900,000 people in the UK. Its main feature is a huge collection of brain images linked to routinely collected health records, both from NHS Scotland, which will help scientists learn more about dementia and other brain diseases. What is special about this database is that it will get better over time – as scientists use it and add their discoveries, it becomes more valuable.",
    "contactPoint": "phs.edris@phs.scot",
    "datasetSubType": "Not applicable",
    "populationSize": 350505
  },
  "coverage": {
    "spatial": "United Kingdom,Scotland",
    "followUp": "Other",
    "typicalAgeRange": "0-150"
  },
  "required": {
    "issued": "2024-10-08T11:28:15.735494Z",
    "version": "1.0.0",
    "modified": "2024-10-08T11:28:15.735506Z",
    "gatewayId": "54",
    "revisions": [
      {
        "url": "https://web.prod.hdruk.cloud//dataset/54?version=1.0.0",
        "version": "1.0.0"
      }
    ],
    "gatewayPid": "fff2f1df-d11e-4f84-8b08-3e164e526818"
  },
  "provenance": {
    "origin": {
      "source": "Other",
      "imageContrast": "Not stated",
      "collectionSituation": "Other"
    },
    "temporal": {
      "endDate": "2024-05-10",
      "timeLag": "Not applicable",
      "startDate": "2000-01-01",
      "accrualPeriodicity": "Static",
      "distributionReleaseDate": "2024-06-17"
    }
  },
  "observations": [
    {
      "observedNode": "Persons",
      "measuredValue": 350505,
      "observationDate": "2024-05-10",
      "measuredProperty": "count",
      "disambiguatingDescription": "death records"
    }
  ],
  "accessibility": {
    "usage": {
      "resourceCreator": {
        "name": "None"
      },
      "dataUseLimitation": "Project-specific restrictions;,;Research use only",
      "dataUseRequirement": "Institution-specific restrictions;,;Project-specific restrictions"
    },
    "access": {
      "accessRights": "https://publichealthscotland.scot/services/data-research-and-innovation-services/electronic-data-research-and-innovation-service-edris/services-we-offer/",
      "jurisdiction": "GB",
      "accessService": "Scottish National Safe Haven / Trusted Research Environment: https://publichealthscotland.scot/services/data-research-and-innovation-services/electronic-data-research-and-innovation-service-edris/national-safe-haven-nsh/\n\nBrain Health Data Pilot study",
      "dataProcessor": "National Services Scotland",
      "dataController": "National Records Scotland",
      "deliveryLeadTime": "Variable",
      "accessRequestCost": "https://publichealthscotland.scot/services/data-research-and-innovation-services/electronic-data-research-and-innovation-service-edris/cost-of-services/"
    },
    "formatAndStandards": {
      "formats": "text;,;csv",
      "languages": "en",
      "vocabularyEncodingSchemes": "ICD10"
    }
  },
  "structuralMetadata": [
    {
      "name": "NRS DEATHS",
      "columns": [
        {
          "name": "CAUSE_OF_DEATH_CODE_2",
          "dataType": "VARCHAR2",
          "sensitive": false,
          "description": "See CAUSE_OF_DEATH_CODE_0"
        }
      ]
    },
    {
      "name": "NRS DEATHS",
      "columns": [
        {
          "name": "SIMD2012_SC_DECILE",
          "dataType": "INTEGER",
          "sensitive": false,
          "description": "Scotland Level deciles for SIMD"
        }
      ]
    },
    {
      "name": "NRS DEATHS",
      "columns": [
        {
          "name": "UR8_2013_2014",
          "dataType": "INTEGER",
          "sensitive": false,
          "description": "Urban/Rural 8-fold classification"
        }
      ]
    },
    {
      "name": "NRS DEATHS",
      "columns": [
        {
          "name": "CAUSE_OF_DEATH_CODE_0",
          "dataType": "VARCHAR2",
          "sensitive": false,
          "description": "Causes of death refers to all diseases, morbid conditions or injuries that either resulted in or contributed to death, and the circumstances of the accident or violence that produced any such injuries."
        }
      ]
    },
    {
      "name": "NRS DEATHS",
      "columns": [
        {
          "name": "CAUSE_OF_DEATH_CODE_8",
          "dataType": "VARCHAR2",
          "sensitive": false,
          "description": "See CAUSE_OF_DEATH_CODE_0"
        }
      ]
    },
    {
      "name": "NRS DEATHS",
      "columns": [
        {
          "name": "UR8_2009_2010",
          "dataType": "INTEGER",
          "sensitive": false,
          "description": "Urban/Rural 8-fold classification"
        }
      ]
    },
    {
      "name": "NRS DEATHS",
      "columns": [
        {
          "name": "UR8_2007_2008",
          "dataType": "INTEGER",
          "sensitive": false,
          "description": "Urban/Rural 8-fold classification"
        }
      ]
    },
    {
      "name": "NRS DEATHS",
      "columns": [
        {
          "name": "SIMD2004_SC_DECILE",
          "dataType": "INTEGER",
          "sensitive": false,
          "description": "Scotland Level deciles for SIMD"
        }
      ]
    },
    {
      "name": "NRS DEATHS",
      "columns": [
        {
          "name": "ETHNICITY_CODE",
          "dataType": "VARCHAR2",
          "sensitive": false,
          "description": "Ethnicity of the deceased person (code)"
        }
      ]
    },
    {
      "name": "NRS DEATHS",
      "columns": [
        {
          "name": "CAUSE_OF_DEATH_CODE_9",
          "dataType": "VARCHAR2",
          "sensitive": false,
          "description": "See CAUSE_OF_DEATH_CODE_0"
        }
      ]
    },
    {
      "name": "NRS DEATHS",
      "columns": [
        {
          "name": "AGE",
          "dataType": "NUMBER",
          "sensitive": false,
          "description": "Age at death"
        }
      ]
    },
    {
      "name": "NRS DEATHS",
      "columns": [
        {
          "name": "SIMD2006_SC_DECILE",
          "dataType": "INTEGER",
          "sensitive": false,
          "description": "Scotland Level deciles for SIMD"
        }
      ]
    },
    {
      "name": "NRS DEATHS",
      "columns": [
        {
          "name": "CAUSE_OF_DEATH_CODE_6",
          "dataType": "VARCHAR2",
          "sensitive": false,
          "description": "See CAUSE_OF_DEATH_CODE_0"
        }
      ]
    },
    {
      "name": "NRS DEATHS",
      "columns": [
        {
          "name": "CAUSE_OF_DEATH_CODE_1",
          "dataType": "VARCHAR2",
          "sensitive": false,
          "description": "See CAUSE_OF_DEATH_CODE_0"
        }
      ]
    },
    {
      "name": "NRS DEATHS",
      "columns": [
        {
          "name": "MARITAL_STATUS",
          "dataType": "VARCHAR3",
          "sensitive": false,
          "description": "The civil status of each individual in relation to the marriage laws or customs of the country."
        }
      ]
    },
    {
      "name": "NRS DEATHS",
      "columns": [
        {
          "name": "CAUSE_OF_DEATH_CODE_4",
          "dataType": "VARCHAR2",
          "sensitive": false,
          "description": "See CAUSE_OF_DEATH_CODE_0"
        }
      ]
    },
    {
      "name": "NRS DEATHS",
      "columns": [
        {
          "name": "UR8_2005_2006",
          "dataType": "INTEGER",
          "sensitive": false,
          "description": "Urban/Rural 8-fold classification"
        }
      ]
    },
    {
      "name": "NRS DEATHS",
      "columns": [
        {
          "name": "UNDERLYING_CAUSE_OF_DEATH",
          "dataType": "VARCHAR2",
          "sensitive": false,
          "description": "The disease or injury that initiated the train of morbid events leading directly to death or the circumstances of the accident or violence that produced the injury."
        }
      ]
    },
    {
      "name": "NRS DEATHS",
      "columns": [
        {
          "name": "SEX",
          "dataType": "VARCHAR2",
          "sensitive": false,
          "description": "Gender / Sex"
        }
      ]
    },
    {
      "name": "NRS DEATHS",
      "columns": [
        {
          "name": "SIMD2020_SC_DECILE",
          "dataType": "INTEGER",
          "sensitive": false,
          "description": "Scotland Level deciles for SIMD"
        }
      ]
    },
    {
      "name": "NRS DEATHS",
      "columns": [
        {
          "name": "UR8_2011_2012",
          "dataType": "INTEGER",
          "sensitive": false,
          "description": "Urban/Rural 8-fold classification"
        }
      ]
    },
    {
      "name": "NRS DEATHS",
      "columns": [
        {
          "name": "UR8_2016",
          "dataType": "INTEGER",
          "sensitive": false,
          "description": "Urban/Rural 8-fold classification"
        }
      ]
    },
    {
      "name": "NRS DEATHS",
      "columns": [
        {
          "name": "PSEUDO-ANONYMISED ID NUMBER",
          "dataType": "varchar",
          "sensitive": false
        }
      ]
    },
    {
      "name": "NRS DEATHS",
      "columns": [
        {
          "name": "DATE_OF_DEATH",
          "dataType": "DATE",
          "sensitive": false,
          "description": "Date of death / Date of event"
        }
      ]
    },
    {
      "name": "NRS DEATHS",
      "columns": [
        {
          "name": "SIMD2016_SC_DECILE",
          "dataType": "INTEGER",
          "sensitive": false,
          "description": "Scotland Level deciles for SIMD"
        }
      ]
    },
    {
      "name": "NRS DEATHS",
      "columns": [
        {
          "name": "INSTITUTION",
          "dataType": "VARCHAR2",
          "sensitive": false,
          "description": "Institution code where death occurred."
        }
      ]
    },
    {
      "name": "NRS DEATHS",
      "columns": [
        {
          "name": "CAUSE_OF_DEATH_CODE_5",
          "dataType": "VARCHAR2",
          "sensitive": false,
          "description": "See CAUSE_OF_DEATH_CODE_0"
        }
      ]
    },
    {
      "name": "NRS DEATHS",
      "columns": [
        {
          "name": "CAUSE_OF_DEATH_CODE_3",
          "dataType": "VARCHAR2",
          "sensitive": false,
          "description": "See CAUSE_OF_DEATH_CODE_0"
        }
      ]
    },
    {
      "name": "NRS DEATHS",
      "columns": [
        {
          "name": "UR8_2003_2004",
          "dataType": "INTEGER",
          "sensitive": false,
          "description": "Urban/Rural 8-fold classification"
        }
      ]
    },
    {
      "name": "NRS DEATHS",
      "columns": [
        {
          "name": "CAUSE_OF_DEATH_CODE_7",
          "dataType": "VARCHAR2",
          "sensitive": false,
          "description": "See CAUSE_OF_DEATH_CODE_0"
        }
      ]
    },
    {
      "name": "NRS DEATHS",
      "columns": [
        {
          "name": "POSTCODE",
          "dataType": "VARCHAR2",
          "sensitive": false,
          "description": "Postcode of residence"
        }
      ]
    },
    {
      "name": "NRS DEATHS",
      "columns": [
        {
          "name": "HBRES_2014",
          "dataType": "VARCHAR2",
          "sensitive": false,
          "description": "Deceased's NHS Health Board of residence based on current health board geography"
        }
      ]
    },
    {
      "name": "NRS DEATHS",
      "columns": [
        {
          "name": "SIMD2020_SC_DECILE\nSIMD2016_SC_DECILE\nSIMD2012_SC_DECILE\nSIMD2009_SC_DECILE\nSIMD2006_SC_DECILE\nSIMD2004_SC_DECILE",
          "dataType": "INTEGER",
          "sensitive": false,
          "description": "Scotland Level deciles for SIMD"
        }
      ]
    },
    {
      "name": "NRS DEATHS",
      "columns": [
        {
          "name": "HBLOC_2014",
          "dataType": "VARCHAR2",
          "sensitive": false,
          "description": "NHS Health Board area where death occurred based on current health board geography"
        }
      ]
    },
    {
      "name": "NRS DEATHS",
      "columns": [
        {
          "name": "SIMD2009_SC_DECILE",
          "dataType": "INTEGER",
          "sensitive": false,
          "description": "Scotland Level deciles for SIMD"
        }
      ]
    },
    {
      "name": "NRS DEATHS",
      "columns": [
        {
          "name": "POST_MORTEM_INDICATOR",
          "dataType": "VARCHAR2",
          "sensitive": false,
          "description": "Information regarding whether or not a post morten has been performed or proposed."
        }
      ]
    },
    {
      "name": "NRS DEATHS",
      "columns": [
        {
          "name": "UR8_2003_2004\nUR8_2005_2006\nUR8_2007_2008\nUR8_2009_2010\nUR8_2011_2012\nUR8_2013_2014 \nUR8_2016",
          "dataType": "INTEGER",
          "sensitive": false,
          "description": "Urban/Rural 8-fold classification"
        }
      ]
    },
    {
      "name": "NRS DEATHS",
      "columns": [
        {
          "name": "DATE_OF_BIRTH",
          "dataType": "DATE",
          "sensitive": false,
          "description": "Date of birth"
        }
      ]
    }
  ]
}

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