This work is part of the Data and Connectivity National Core Studies, funded by the UK Government. Led by Health Data Research UK in partnership with the Office for National Statistics. This study is making UK-wide health and administrative data available for linkage and accessible to catalyse COVID-19 research.
- Six “National Core Studies” established by the government
- Studies will ensure safe and transparent access to data to support analysis and enable insights to tackle COVID-19
- Health Data Research UK in partnership with the Office for National Statistics will lead “Data and Connectivity” – the cross-cutting programme to make data available to all of the studies
Today, the UK government has established six national studies to support and accelerate the UK’s research response to COVID-19. The studies will use health data to identify and respond to essential questions to rapidly inform policy, operations and planning and maintain resilience against COVID-19 across the UK this winter and beyond.
These research questions include topic such as the levels of infection in the general population and in specific settings such as schools or nursing homes, the impact of different environments on the spread of COVID-19, and now the immune system offers protection following infection. The aim is to build on the wealth of expertise that we have in health research across the UK.
As the national institute for health data science, Health Data Research UK (HDR UK) is working in partnership with the Office for National Statistics (ONS), the NHS across the four nations and other key partners to lead one of the studies. Known as “Data and Connectivity”, this study connects the other five studies and accelerates the approach to answering key research questions by enabling streamlined data access and analysis.
“Data and Connectivity” will build on the Health Data Research Innovation Gateway and the UK’s trusted research environments (“TREs”) to ensure data is stored safely and securely, made readily available to researchers and provide services that make the data easier to use. Each national core study will work to a set of data sharing principles and will involve patients and the public on the design, development and governance of their activities.
As publicly funded research, the data, outputs and observations generated from the National Core Studies will be openly accessible via the Health Data Research Innovation Gateway. Making this available will allow the scientific community to pool expertise, draw fresh insights, and more rapidly increase our collective understanding of COVID-19. It will also make these vital insights, and how the data has been used, transparent for anyone to see. As part of our wider commitment to engagement, the programme will involve the public in every stage from data use to analysis and insights.
In addition to the crucial support in the UK’s response to COVID-19, the Data and Connectivity programme creates an opportunity to accelerate HDR UK’s work to develop the UK’s health data research infrastructure; facilitating new discoveries, better understanding and improving health and care in the UK.
This work builds upon Scotland’s existing data resources, expertise and capabilities offered by service delivery partners and partner organisations including HDR-UK, The Scottish Government, PHS (eDRIS), NRS, EPCC, ADR UK alongside accredited facilities, such as the Scottish National Safe Haven and working in partnership with Scottish Universities.
In response to the far reaching consequences of the pandemic, a collaboration between Scottish Government, Scotland’s leading academic institutions and public bodies has developed the COVID-19 Data Research Service which aims to facilitate insight from data to support the COVID-19 response.